I am sure that a lot of people in the world have never heard of Haemochromatosis. I hadn't until just over two years ago when Will was diagnosed with it.
So, what is it?
It is a recessive gene disorder, a mutated gene! It is one of the most frequent inborn errors of iron metabolism. The disorder causes the body to absorb more iron than usual from food. Organs such as the liver, pancreas and heart are affected and ultimately damaged. Without treatment, it can cause premature death.
So, what are the symptoms: -
- chronic fatigue
- Weakness
- Lethargy
- Abdominal Pain
- Arthritis
- Diabetes
- Liver disorders ; enlarged liver, cirrhosis
- Loss of sex drive
- Decrease in body hair
- Discolouration or bronzing of the skin
- Cardio-myopathy
The only way to treat this condition, is to donate blood - bleed the excess iron out of your body!
Will used to only have to donate blood every three months, but when he had his iron levels tested a few months back, his ferratin levels came back as being in the high 500's - extremely dangerous, and he has been working on getting them down. He had to donate blood, weekly for three weeks and then have a blood test to check his levels again. That was a success as his levels had dropped to in the 300's, however, still not low enough, the doctor wants him under 100. So, now he has to donate blood weekly again for three weeks, then monthly for three months, then be tested again. Such a pain when our mobile blood bank only visits every three months! So, we have to make the trek to Frankston at the moment, so off we go again tomorrow. I go with him, as the first time he donated blood, he had an excessive reaction - went unconscious and we had to wait around for ages. Thank god that has not happened since, although he has had a few times lately where he has not felt the best. No wonder when he is having 500mls of blood drained weekly! He currently has permanent track marks too!!
Our two little boys will either have one of the genes or both as well, as Will has both genes. It usually does not affect you until around 30 years of age, so we won't get them tested until they are teenagers.
Hopefully soon his levels will settle down, he definitely feels a lot better once the excess iron is removed - an ongoing journey that is just a part of our lives.
wow, how interesting, I hope it all works out for him :) I love the title by the way! ♥
ReplyDeleteGosh, you guys kept this quiet! I'd love to donate blood but I can't while pregnant. Once I'm done cooking this baby I'll make a trip to the blood bank with you guys.
ReplyDeletexx
Unfortunately there are a lot of AIDS/Herpes denials on Herbal cures still out there. I did research on them after I was tested HIV/Herpes positive. I was so worried I was going to die soon. I continued my search again on herbal remedy for Std, then I found lots of testimony on how Dr Itua Herbal Medicine Cured HIV/Aids, Herpes Virus,Copd, Hepatitis, Diabetes, On websites sharing their testimonies, which made much more sense to me. All the authors pronounce Dr Itua As a man with Good Heart, I pick interest in their testimonies and I contact him about my situation then he gave me procedure how it works, I proceed after one week he courier his Herbal Medicine to me and instruct me on how to drink it for two weeks to cure. I receive His Herbal Medicine so I drank it for two weeks as I was told then after 2 days I go for a test I found out I was cured from HIV/Aids & Herpes Virus, I pay homage to him 2 months ago to his country to celebrate with him on his African festival which he told me it usually happens every year. I know there are lots of (HIV)/Aids Herpes Virus denials of Herbal Remedy movement, the same few doctors and they represent a very small fraction of the community. I could have died because I refused Natural Herbs Cures for so long, but luckily, by the grace of God I am alive to tell my story. Contact Info. Email...drituaherbalcenter@gmail.com/ www.drituaherbalcenter.com. Just in case you need someone to talk with. He cures the following diseases below...1. Herpes 2. cancer 3. HIV / AIDS 4. hepatitis 5. Bring my ex back 6. Leprosy 7. SARS 8. Bubonic plague
ReplyDelete9. Cerebrovascular disease 10. Lower respiratory infections 11. Syphilis 12. Influenza A-H1N1 (swine flu) 13.Ischemic heart disease 14. Chronic obstructive pulmonary disease 15. Whooping cough 16. Perinatal complications 17. diarrhea 18 .. lung cancer,Diabetes,HPV,Hepatitis,Back pain and so many other diseases also you can visit his website to read more.